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Thanks! Sorry I have to go.

I can relate to your muscular dystrophy all too well, I spent 5 years with a very beautiful and wonderful fun loving lady with that condition. I joined the MD forums to try and figure out what I could do, or at least better understand the nature of what is going on with her body.

I am glad to have known you, (if only thru the forum here) and wish you the best that you can possibly have.
 
Well I'll keep is short, since you had enough well wishers, I'm going to tell you it was a pleasure having you on the site, and I truly hope you are wrong about your diagnostics after VDD, this is one time we hope you are WRONG. Just know we are here if you need anything and will always have you in our hearts. ;)
 
Well,there's no chance of a wrong diagnosis and no treatment. A quick read about MD will explain the grim way things would end. In the last few months I've lost mobility and am pretty dependent on my wife. It's too hard on her and just not fair. She's still hot, an absolute bundle of energy and very healthy at 60. Time has come to set us both free. I used to be 6'2" 200lbs of come and get it, but now this body is becoming a prison. My mind feels 34 but my body 104. Really sucks a big one.

Anyway, enough about that. Google will tell you anything else you want to know. Just think of me with a smile if you enjôyed or learned something from my posts. And of course I've always been right!
 
One thing to add: I had a friend who made a similar choice a few years ago. For various reasons, including the uncertain legal status of the procedure (a trip to a Swiss clinic, which she needed assistance to make), she told very few people in advance. So I just wanted to thank you for giving us the chance to say our farewells. You and your family will be in my thoughts, through this and afterwards.
 
Damn Crash. That's too soon, but it's the shitty way it is, eh?
I hope you're surrounded by the ones you love, feeling their acceptance and warmth. This is a time to let others support you, like you support others.
I got to know you as a knowledgeable, positive and humorous member, highly appreciated by me for your contributions to our forums. Thank you.

To stay with Pink Floyd (Great gig in the sky): 'And I am not frightened of dying, any time will do, I don't mind. Why should I be frightened of dying? There's no reason for it, you've gotta go sometime.'
Be strong, a little bit longer. You'll get there, you'll be okay.
 
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I knew two couples who got a legal divorce to keep his/her condition from totally destroying the family's assets.
Then they both had to make "the decision" to voluntarily go to a "care center" and from there, it was only a scant few weeks before the victim's mind had gone beyond the edge....

I would visit, and "no one was home". I watched my FIL do much the same with dementia, my wife and I had him in our home for almost a year... he ended up in diapers, and in a care home, where he did not get the constant looking after... ended up with a urinary tract infection which did him in. His lungs filled with fluids and that was it.

My father, fell and broke a hip. Stayed with my sister in Kansas for a couple of years, and then caught pneumonia and she called 911. When he arrived at the hospital he told them "DNR" and NO MEDS PERIOD!

My sister and I had watched him go from a dynamo that plowed up the ground, planted the seeds, carried the harvest to market, and fished on Sunday..... to a person who could do nothing for himself.

he told the two of us, "it is time for me to go, I can't go fishing, I can't do anything by myself. So 'goodbye' and go home. I am okay"

. I went back home to Arizona ( sis lived in SE Kansas ) and she called me the next day "he is gone".
So, I turned around and went to Oklahoma City and we tied up the "end of business" there.

CrashDamage, I will always think of you when visiting this forum...
and I will treasure our PMs together.
 
Many more thanks, thank you. Apparently not everyone despises me.

I lived a kinda unusual colorful ife.
There's stories that will be swapped around at the BBQ.

I've always wondered- was that your truck?

Speaking of that colorful life,I'm guessing there's a story here............

I want one of those to be about how I checked out on my terms.
:thumbsupdroid:
I've shared this with a good friend of mine,she was moved to smiles & tears,to paraphrase Jim Valvano..........


As for the other side, I guess it will be an adventure.
We'll see ya there one day & look ya up for a guided tour............... :thumbsupdroid:
 
crash.. wow... it is hard to find the words. I like many.. don't now what to say in these situations.
what ever words that I can find..it always feels.. small and not enough
but need to say.. what I can.
thanks for letting us know you.

you are showing us all.. great strength and character.
how you are handling this.

when my time comes.. I hope am able to be strong as you.
take care.. stay strong.. maybe we will meet again
 
It is tough to think of something comforting to say to someone in this situation. Even more so because I don't think we've really said much to each other on AF, but in my travels I've seen you posting in a lot of different forums. You're one of a small handful of people I've come to recognize on the site, even if it's just passing by. I think we both joined AF around the same time?

Anyway, It takes a lot of courage and strength to make a decision like that. I can only wish you well on your journey, and that I hope this ultimately brings comfort to you and your family.

You will be missed here :(
 
Wow...this has been great! Nobody has cussed me out yet! Really, your comments mean a lot. Giving me a lot of warm fuzzy feelings.
I do want to say a few things about the comments that have been made.

First, a little advice. Sooner or later most families have to make similar choices. Do we turn off the machines, do we have that last, desperate cancer operation? Just make sure their wishes are known and you have the a legal paperwork done to prove it. Most of the time they'll choose to bow gracefully rather than try to wring out every last possible breath..

Regarding the rather gruesome tales by AZb1500 - that's exactly the kind of situation I wanted to avoid. Laying helpless in a home, spending our money for them to park my carcass in a room in an adult diaper. Would I prefer cloth or paper/plastic? White ones or blue? Would you prefer a càtheter with that?

People have called me courageous for making the decision to legally end my life. Not at all. I'm just doing what's best for évrerryone concerned. I not afraid of dying, but how I go scares the hell outta me. I'll pass on the adult diapers, thank you very much, though the blue ones are rather attractive.

Instead, I'm a lucky SOB. I get to stay in the big old house we've called home for 37 years.. I have my beautiful wife for my nurse. Family and friends come by every day. In a bit of irony, I'll die in my sleep in the same room my son was born in (yes, he was a home birth).

So, I'm not courageous. I'm taking the easiest, most comfortable way I can to punch my ticket. Save such accolades for those who really deserve them.
 
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I believe everyone should have the right to make this choice. To have a dignified end to their life, rather than suffer in a terrible way, being effectively lost to their loved ones, and all the emotional turmoil that this causes. I've also experienced it first hand with my Gran.
I'm sure that the day will come when it's much easier to choose this option in the UK.
 
But after all this time I felt like I should formally say goodbye rather than just disappear. So, for those who may be curious, my muscular dystrophy has progressed to the point that I'm doing a VDD (Google it).
I'm not writing this looking for sympathy. I'm 63 and had a full life including 38 years married to a wonderful, beautiful woman and two great kids. And I had good health until the last few years.
The mark you leave behind in this world are your kind words, deeds and children.:)

Thank you, thank you, thank you for the heartfelt replies. I was never financially rich, but I'm rich in the things that make a satisfying life, and obviously that includes my time spent here. But life is too short to waste time feeling down - have a party! That's what my family is doing. No sad, somber funeral for me, A giant blues and BBQ bash!

If your like myself you done the best you could spoke your mind weather others liked it or not they can go hang!

Thanks...see you on the dark side of the Moon...

Pink Floyd as I recall "There is no dark side it's all dark"

Sorry to hear this about another, I dealt with something similar to this with my Mother who passed away some years back from cancer. I and the wife was fortunate some what that she choose to stay in our home and the wife cared for her till she went into hospice care in the hospital. Before she was placed in hospice I got us kids together at our home so mom could say her peace to all of us together. While in hospice due to the drugs she would not speak so I was the only one she recognized and had to interpret through sign language to my brother and sisters. She spoke fluent sign due to working at the deaf school and I had learned it because a girl friend of mine at the time was deaf I have never used it since due to bad memories.

"May the sun be on your face the wind at your back and your in heaven a half hour before the devil knows your gone":)

May peace be with you and yours in your journey.
:(
 
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