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MoodyBlues' Mother

I understand your grandfather's reticence to use the wheelchair. There's a pride thing that can happen in older people...
They were already doing some mighty pride-obliterating stuff to him like catheters and such. He was a West Texas plainsman who had been a dirt farmer, fought in World War I, raised four children during the Great Depression, been his county's Selective Service "buffer" during World War II (sending lots of farm hands to war, not a popular job) and survived esophageal cancer that was supposed to kill him within 6 months when he was my age. He was a real-life tough guy underneath his soft-spoken demeanor. He was also one helluva role model!

In the house that he had built and built onto, there were so many different levels that it wasn't really practical to use the wheelchair to get from room to room. He was probably better off keeping active while he could. When they put him into the nursing home (with lots of flat floor space), he used the thing. But it was his final illness, and it had its own rules.

She had been deaf in her left ear since early childhood, and the hearing in her right ear began declining a few years ago. We went for testing and everything, and she was fitted with a state-of-the-art TINY hearing aid--you really couldn't see it unless you were like 6 inches away and actively LOOKING for it in her ear--but she refused to wear it. Vanity, plain and simple. She preferred to trade HEARING better for not being 'embarrassed' by wearing a hearing aid. :rolleyes:
I've been dealing with that myself. My mom is getting increasingly deaf, and instead of getting help, she's content to invent stories in her mind based on what she imagines what she hears. Her whole life has been about others holding her in high regard, one part of her personality disorder according to the psychiatrist. So no hearing aid, and no adult diapers when her bladder frequently lets go. She can't bear to be seen wearing the things, although (at least to me) the alternative of sudden public urination must be even worse. Oh well. My only surviving aunt is as deaf as a post, and I think she likes the peace and quiet. :laugh:

I have tinnitus and hearing loss in my right ear after being kicked in the head. I'm not getting any help with that. I'd do anything to turn off the constant screaming sound!
 
They were already doing some mighty pride-obliterating stuff to him like catheters and such. He was a West Texas plainsman who had been a dirt farmer, fought in World War I, raised four children during the Great Depression, been his county's Selective Service "buffer" during World War II (sending lots of farm hands to war, not a popular job) and survived esophageal cancer that was supposed to kill him within 6 months when he was my age. He was a real-life tough guy underneath his soft-spoken demeanor. He was also one helluva role model!

In the house that he had built and built onto, there were so many different levels that it wasn't really practical to use the wheelchair to get from room to room. He was probably better off keeping active while he could. When they put him into the nursing home (with lots of flat floor space), he used the thing. But it was his final illness, and it had its own rules.
He sounds like quite a guy. :)

I've been dealing with that myself. My mom is getting increasingly deaf, and instead of getting help, she's content to invent stories in her mind based on what she imagines what she hears. Her whole life has been about others holding her in high regard, one part of her personality disorder according to the psychiatrist. So no hearing aid, and no adult diapers when her bladder frequently lets go. She can't bear to be seen wearing the things, although (at least to me) the alternative of sudden public urination must be even worse. Oh well.
See, that's what I just couldn't understand with my mom. I'd much rather be able to hear than worry about UNLIKELY weird looks from strangers--I used to tell Mom, as I'd pull my glasses off my face, "see these? I wear them so I can see what I'm doing! I don't give a shit what anyone else might think!" Whoosh...right over her head. :rolleyes: And diapers! OMFG. The stories I could tell--but won't!--about various 'accidents' Mom had before finally agreeing that she needed diapers, not just bladder pads any more. :eek:

My only surviving aunt is as deaf as a post, and I think she likes the peace and quiet. :laugh:
:D

I have tinnitus and hearing loss in my right ear after being kicked in the head. I'm not getting any help with that. I'd do anything to turn off the constant screaming sound!
Oh my goodness. Ditto here--same side, same issues, only mine happened because of that brain tumor. There is *NO* cure for tinnitus, so don't be fooled by any of those quack products that say they can stop it. My lead brain surgeon, Dr Derald Brackmann at House Ear Institute in LA, told me that tinnitus is NOT a hearing-related problem at all, it just manifests itself as sound. He explained that even people who are 100% deaf can experience tinnitus, so it clearly has nothing to do with the mechanics of hearing. He also said there's no cure for it. There are some practical things I do that help, like ALWAYS having background noise, whether it's the TV, or air conditioner, music, whatever. Even at night--I leave the TV on in my room. :)
 
See, that's what I just couldn't understand with my mom. I'd much rather be able to hear than worry about UNLIKELY weird looks from strangers--I used to tell Mom, as I'd pull my glasses off my face, "see these? I wear them so I can see what I'm doing! I don't give a shit what anyone else might think!" Whoosh...right over her head. :rolleyes: And diapers! OMFG. The stories I could tell--but won't!--about various 'accidents' Mom had before finally agreeing that she needed diapers, not just bladder pads any more. :eek:
Same here. I will say that I no longer take my shoes off when I'm at her place, after what I've seen. :eek:

Oh my goodness. Ditto here--same side, same issues, only mine happened because of that brain tumor. There is *NO* cure for tinnitus, so don't be fooled by any of those quack products that say they can stop it. My lead brain surgeon, Dr Derald Brackmann at House Ear Institute in LA, told me that tinnitus is NOT a hearing-related problem at all, it just manifests itself as sound. He explained that even people who are 100% deaf can experience tinnitus, so it clearly has nothing to do with the mechanics of hearing. He also said there's no cure for it. There are some practical things I do that help, like ALWAYS having background noise, whether it's the TV, or air conditioner, music, whatever. Even at night--I leave the TV on in my room. :)
That was pretty much the same news that I got. If it didn't go away by itself in a month or two, I was stuck with it. :rolleyes: I used to have some pretty noisy computers that helped. Now I have a humidifier that I run year 'round. The fan makes a pretty good racket, and my skin feels great! ;)
 
Same here. I will say that I no longer take my shoes off when I'm at her place, after what I've seen. :eek:
Oh, I so totally GET THAT!! :D

That was pretty much the same news that I got. If it didn't go away by itself in a month or two, I was stuck with it. :rolleyes:
It bugs me when I see ads for garbage that supposedly stops the noise. Bullshit. I do wish the medical establishment would figure out how to quiet the noise, but right now we're stuck with it.

I used to have some pretty noisy computers that helped. Now I have a humidifier that I run year 'round. The fan makes a pretty good racket, and my skin feels great! ;)
I'll bet it does! :)

On a different note, I'm making a list of things I'm going to donate to a convalescent aid place. So far:

. Mom's other wheelchair (she paid for this one outright)
. the bedside commode I ordered last year, and never even took out of its box
. the plastic liners I bought for said commode
. the shower chair
. waterproof bed mats
. hearing aid
. diapers and bladder pads
. baby wipes
. unopened packages of Efferdent
. unopened packages of Poligrip

I know there's more, but that's all that comes to mind right now.
 
hey moodyblues,
i just wanted to say that it sound like you are pulling yourself together and that i'm really glad to hear it. and i would also like to say thanx for sharing all this with your fellow AF members.

and i like to use what my favorite fish always says:
it always cheers me up, and it make sense:D
 
hey moodyblues,
i just wanted to say that it sound like you are pulling yourself together and that i'm really glad to hear it. and i would also like to say thanx for sharing all this with your fellow AF members.

and i like to use what my favorite fish always says:
it always cheers me up, and it make sense:D

I need to meet that fish....i am hungry! Hey MoodyBloos! Zounds like these guys are keeping you laughing!
 
Oh, I so totally GET THAT!! :D
LOL...I suppose I should be sorry that you do, but since I'm still "walking the minefield"... :p

It bugs me when I see ads for garbage that supposedly stops the noise. Bullshit. I do wish the medical establishment would figure out how to quiet the noise, but right now we're stuck with it.
I'd think that microsurgery could be done on the nerve bundle to find and neutralize the one offending nerve fiber. Of course major surgery has its risks, so I can wait a little longer.

On a different note, I'm making a list of things I'm going to donate to a convalescent aid place...
Good! I'll bet it all goes to good use.

A couple years ago I went to the same nursing home where my grandparents lived at one time or another, to visit an old family friend who looked after me when I lived down there. Based on how the equipment there looked, I wouldn't be surprised if my grandfather's old wheelchair is still in use there! I didn't see any wealthy ranchers there.

My mom's place takes charity cases, but is very hush-hush about who they are. Even the ones with enough money have such a hard time getting around, that it's a real help to bring stuff like that to them. I wish I could have more things delivered to me! ;)
 
hey moodyblues,
i just wanted to say that it sound like you are pulling yourself together and that i'm really glad to hear it. and i would also like to say thanx for sharing all this with your fellow AF members.
Thanks. :) I'm working at pulling myself together. I'm winging it, much like I did after Mom's confusion/delusions set in, and again just hoping I'm making good choices as I plod along. I felt like shit today, but I think that was more from getting almost no sleep last night than anything else.

and i like to use what my favorite fish always says:
it always cheers me up, and it make sense:D
That was so perfect! :D :congrats:
 
LOL...I suppose I should be sorry that you do, but since I'm still "walking the minefield"... :p
With my mom, it wasn't so bad when it was just bladder issues, but when it progressed to...well, just use your imagination. :eek:

I'd think that microsurgery could be done on the nerve bundle to find and neutralize the one offending nerve fiber. Of course major surgery has its risks, so I can wait a little longer.
The problem is that they're not really sure where it originates. And this is straight from the mouth of god! My lead surgeon, Dr Brackmann, is truly a god when it comes to the type of brain tumor I had (an acoustic neuroma, which is a tumor on the 8th cranial nerve); he literally wrote the book on them. Other brain surgeons from all over the US and the world send their acoustic neuroma patients to him for surgery. So when he says the origin of tinnitus isn't known, I bow down and believe him. :D

Good! I'll bet it all goes to good use.
Seeing firsthand how expensive things are, I want to make sure people in need can get these for free. There's a convalescent aid place in Pasadena that lends/gives stuff to people who can't afford them. That's where I'm planning to donate Mom's stuff.

A couple years ago I went to the same nursing home where my grandparents lived at one time or another, to visit an old family friend who looked after me when I lived down there. Based on how the equipment there looked, I wouldn't be surprised if my grandfather's old wheelchair is still in use there!
Hey, if it still works, great!

My mom's place takes charity cases, but is very hush-hush about who they are. Even the ones with enough money have such a hard time getting around, that it's a real help to bring stuff like that to them. I wish I could have more things delivered to me! ;)
One word: Amazon. :D Seriously, I buy everything online, even groceries--thank goodness Vons delivers--and Amazon is just so handy. Plus I realized something the other day when my Allstate agent called. If I needed to file a claim, I can easily produce proof of purchase for things like TVs, simply by accessing my Amazon (or other online places I've purchased from) account. Much tidier and easier than having to scrounge for actual receipts!
 
Speed, I keep forgetting to mention something: Your current sig is wonderful:

"Only people who are capable of loving strongly can also suffer great sorrow, but this same necessity of loving serves to counteract their grief and heals them."
-- Leo Tolstoy

Not only wonderful, but so apropos for me right now--it really touches me. :)
 
MB, you are doing much better than you think. My bro would not even talk about our moms or wanted anything after she died of hers for memories......a year later, it hit him like a major storm. Yrs after, he admitted he blocked it out to avoid accepting what happened.

You see, moody you are actually helping us too. I actually feel better when i think back.
 
Thanks, Rico. Sometimes I wonder if it's okay that I'm coping as well as I am. I think I've said that before. :confused: Oh well. But really, on days--like today--where I feel okay and am not moping around sobbing all day, I wonder if I should feel guilty. Then I remember that Mom didn't want me moping around sobbing after she was gone. So I guess it is okay. I can see how your brother handled it the way he did, because it really is such an individual process. My cousin has said a few times that Mom's death is "the end of an era" and it really is--between her and me, ALL our parents are now gone. Her mom died totally unexpectedly at only 48, which was shocking beyond description. By comparison, having months to prepare for my mom's death was so much easier. Still, though, death is death...and there's no way to know how anyone will react.
 
With my mom, it wasn't so bad when it was just bladder issues, but when it progressed to...well, just use your imagination. :eek:
Oh, I don't have to imagine, unfortunately... I eat Imodium like candy.

The problem is that they're not really sure where it originates. And this is straight from the mouth of god! My lead surgeon, Dr Brackmann, is truly a god when it comes to the type of brain tumor I had (an acoustic neuroma, which is a tumor on the 8th cranial nerve); he literally wrote the book on them. Other brain surgeons from all over the US and the world send their acoustic neuroma patients to him for surgery. So when he says the origin of tinnitus isn't known, I bow down and believe him. :D
Your case is a whole different ball game, that's for sure! I was told that my cochlear cilia that got damaged and caused the hearing loss at the same frequency that my tinnitus is at were "stuck on" and might come loose or something. I figured that if they could come loose and relieve me of tinnitus, then if they didn't, removing them surgically might work. This could be naive thinking on my part. And it's a moot point as long as I'm uninsured. :(

Seeing firsthand how expensive things are, I want to make sure people in need can get these for free. There's a convalescent aid place in Pasadena that lends/gives stuff to people who can't afford them. That's where I'm planning to donate Mom's stuff.
It's a lot better than throwing stuff away! :thumb:

One word: Amazon. :D Seriously, I buy everything online, even groceries--thank goodness Vons delivers--and Amazon is just so handy. Plus I realized something the other day when my Allstate agent called. If I needed to file a claim, I can easily produce proof of purchase for things like TVs, simply by accessing my Amazon (or other online places I've purchased from) account. Much tidier and easier than having to scrounge for actual receipts!
I'll have to look into that! I was using Peapod when my illness got to the point where I didn't have the energy to get to the store. Since then they've quit delivering to Madison, and I thought I was out of luck.

I've been using Amazon to get wicks and chemicals for my humidifier after I couldn't find a hardware store that carries them locally. Just recently I found that I can't buy replacement cartridges for my water filter in the store I bought it from. So it looks like the writing's on the wall. Thanks for the tip!

Now if I can only get my mom to order groceries online...:hmmmm:
 
Oh, I don't have to imagine, unfortunately... I eat Imodium like candy.
OMG, I used to, too. Seriously, I used to buy Imodium like there was no tomorrow. I never, ever left my house without a supply in my purse. I'd had IBS-D (irritable bowel syndrome, the diarrhea variety) for as long as I could remember. And then the most unexpected thing happened--following my craniotomy, it went away. Poof! Just like that. No one knows why. I don't really care, either. I'm just *SO* glad it's gone after dealing with it for decades.
 
OMG, I used to, too. Seriously, I used to buy Imodium like there was no tomorrow. I never, ever left my house without a supply in my purse. I'd had IBS-D (irritable bowel syndrome, the diarrhea variety) for as long as I could remember. And then the most unexpected thing happened--following my craniotomy, it went away. Poof! Just like that. No one knows why. I don't really care, either. I'm just *SO* glad it's gone after dealing with it for decades.
This is getting spooky! :eek:

I still have my IBS-D, and although I'm not quite ready to get a hole in my head to get rid of my symptoms, I'd seriously consider it about now. Mine started in adulthood though.

I just realized that I'm officially old. I'm comparing my ailments with other people in a public place. Next stop, wrap-around sunglasses! :laugh:

F30__48944.1335382025.1280.1280.JPG
 
This is getting spooky! :eek:

I still have my IBS-D, and although I'm not quite ready to get a hole in my head to get rid of my symptoms, I'd seriously consider it about now. Mine started in adulthood though.

I just realized that I'm officially old. I'm comparing my ailments with other people in a public place. Next stop, wrap-around sunglasses! :laugh:

F30__48944.1335382025.1280.1280.JPG

That's OK, because once Google Glasses and other personal HUD type things become popular and everyone is wearing them, they won't look quite so dorky.
 
That's OK, because once Google Glasses and other personal HUD type things become popular and everyone is wearing them, they won't look quite so dorky.
Hey, that's not a bad idea! I can sit on a bench in the mall, skimming credit card numbers from the RFID chips as people walk by, and I'll look just like any other old coot doing whatever it is they do at the mall...

OMG THEY'RE STEALING MY CREDIT CARD NUMBERS!!! :eek:
 
This is getting spooky! :eek:
Yes indeed. Could we be twins separated at birth? :hmmmm: :hmmmm2:

I still have my IBS-D, and although I'm not quite ready to get a hole in my head to get rid of my symptoms, I'd seriously consider it about now.
Ha! :D Trust me, it is *SO* not fun. Here's a post-op pic, which I'll hide for the squeamish types:

postop.jpg

I thought I was really well prepared prior to the surgery, in that I knew what its likely complications could be, but I was absolutely floored by the actual experience. I definitely do not recommend a middle fossa craniotomy for entertainment purposes! :laugh:

Mine started in adulthood though.
Interesting. Mine dated back to childhood and was truly the bane of my existence for decades. No one knows why the craniotomy put an end to it, but it did. :D

I just realized that I'm officially old. I'm comparing my ailments with other people in a public place.
Oh what the hell! I've come to terms with being 'old' (okay, so 50-something isn't TECHNICALLY old, but whatever), so comparing notes on various ailments with people in public places doesn't even faze me now.
 
I'm 53 myself, just remember getting old sure as heck beats the alternative! :eek:
OB

I am getting a kick out of your screen name. Just made my day. Wow guys its almost the weekend. Heres my virtual $20. Who all's chipping in to send Moodie to one of them fancy eat'n places over the weekend!

It can be the virtual cuisine of her choice!

198229d1346029741-sam_0182.jpg
 
Hey, that's not a bad idea! I can sit on a bench in the mall, skimming credit card numbers from the RFID chips as people walk by, and I'll look just like any other old coot doing whatever it is they do at the mall...

OMG THEY'RE STEALING MY CREDIT CARD NUMBERS!!! :eek:

So that replaces sitting there and groping female butts?
The original dirty old man.
 
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